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Delivering on the Promise:
U.S. Department of Education
Self-Evaluation to Promote Community Living for People with Disabilities
Report to the President On Executive Order 13217
Department of Education
I. Overview
Secretary Rod Paige named Joanne Wilson, Commissioner of the
Rehabilitation Services Administration (RSA), as the lead for coordinating the
Department of Educations implementation of Executive Order (E.O.) 13217.
RSA is organizationally located within the Office of Special Education and Rehabilitative
Services (OSERS). OSERS is led by Assistant Secretary Robert Pasternack and
houses the Office of Special Education Programs (OSEP) and the National Institute
on Disability and Rehabilitation Research (NIDRR) in addition to RSA. OSERS
supports programs that assist in educating children with disabilities, provides
for the vocational rehabilitation of youth and adults with disabilities, and
supports research to improve the lives of individuals with disabilities.
Each component of OSERS conducted a self-evaluation of the statutes,
regulations, policies and programs that it administers in order to identify
barriers to the implementation of E.O. 13217, which promotes the availability
of community alternatives for individuals with disabilities. In addition, OSERS
met with representatives of other offices in the Department of Education (ED)
to discuss EDs overall effort to implement the Executive Order and to
facilitate similar self-evaluations. The other offices included: the Office
of Vocational and Adult Education, the Office of Post-Secondary Education, and
the Office for Civil Rights. The Office of the General Counsel and the Office
of Elementary and Secondary Education were also consulted. EDs goals were
to identify potential barriers that may limit community options for individuals
with disabilities and to identify opportunities to enhance community options
for this population.
II. Public Input
E.O. 13217 includes a requirement that public input must be sought
and considered as the federal review and self-evaluation are conducted. ED officials
participated in the public input activities organized by the Department
of Health and Human Services (HHS), including the National Teleconference on
Community Living held on August 15, 2001, and the Public Listening Session held
on September 5, 2001. In addition, ED staff have reviewed relevant public input
received as the result of the Notice regarding E.O. 13217 that HHS published
in the Federal Register on July 27, 2001.
We learned the following from the commenters relevant to ED programs:
· the value and importance of work in the life of an individual
with a disability;
· the importance of choice in service delivery and employment
options;
· the critical need for independent living services and
resources;
· the lack of employment and educational opportunities
for individuals with disabilities;
· the need to promote integration in work and school settings;
· the need to increase access to assistive technology
for students and adults with disabilities; and
· the growing risk of school failure for students with
disabilities especially those with mental disorders.
III. Initiatives Underway to Promote Community Options
Olmstead Project
OSERS recognized the importance of the Olmstead decision early
on and began a joint project with HHS and the Department of Labor (DOL) to promote
grass-roots advocacy in support of home/community-based waivers under Medicaid.
In federal fiscal years 2000 and 2001, all components in OSERS (RSA, NIDRR,
and OSEP) pooled funding to support this project.
The Independent Living Research Utilization project (ILRU) and
the Brain Injury Association, Inc. (BIA) are jointly conducting this project
by assisting states to implement the Olmstead ruling. ILRU and BIA designated
a core group of cross-disability leaders to work with states to develop their
five-year comprehensive plan for providing supports and services for people
with significant disabilities. The core group has been trained to help states
plan, implement, and evaluate strong consumer-directed home and community based
services for persons with disabilities. The training is funded by grants from
ED, HHS and DOL, while the developmental work was supported by the Robert Wood
Johnson Foundation.
As the second year of the Olmstead project gets underway, it
will focus on additional training to explore community-based alternatives. The
core group of participants trained in the first year will receive additional
technical assistance and problem-solving support from experts to assist those
participants in implementing the Olmstead decision in each state. A planning
session for the second project year was conducted in September 2001.
The goal for the second year of this project is to develop and
provide intensive, nationwide training in Olmstead-related issues to leaders
in the disability community, in such areas as:
Conducting comprehensive policy analysis in selected states and
preparing training manuals that cover promising practices in the implementation
of the Olmstead decision;
Covering selected topics from the first year in greater detail
and addressing specific technical issues related to home and community-based
service delivery;
Introducing new subject areas such as: Workforce Investment-Employment,
Housing, Long-Term Service Options and Models, and Assistive Technology;
Delivering two bi-regional, comprehensive training sessions on
implementation of Olmstead provisions to a total of 240 individuals; and,
Adding an option for providing technical assistance that was
developed in the first year via internet and telephone.
Training on the Olmstead Decision
The RSA Rehabilitation Training Program provided funds to both
the Rehabilitation Continuing Education Program (RCEP) at the University of
Arkansas and the RCEP at San Diego State University to develop and implement
training on the implications of the Olmstead decision for vocational rehabilitation
and independent living professionals.
The training addresses community-based alternatives for individuals
with disabilities and the implications for the independent living and vocational
rehabilitation communities. In addition, the training includes learning objectives
to ensure that rehabilitation professionals and community organizations have
a working knowledge of the Olmstead decision and its applicability to the VR
process. The training includes the following four objectives:
To increase the capacity of VR programs to outreach to and serve
potential consumers as the result of the Olmstead decision;
To increase the capacity of VR programs to coordinate with other
relevant agencies that serve consumers who are impacted by the Olmstead decision;
To train VR staff on both the unique needs of potential consumers
who are impacted by the Olmstead decision and effective intervention strategies;
and
To increase the capacity of centers for independent living (CILs)
to outreach to and serve potential consumers that are impacted by the Olmstead
decision.
Elimination of Extended
On January 22, 2001, OSERS published final regulations that revised
the definition of what constitutes an employment outcome under the
State Vocational Rehabilitation (VR) Services Program. The State VR Services
Program is a formula grant program under Title I of the Rehabilitation Act of
1973, as amended, and supports the state-federal public program of vocational
rehabilitation services leading to employment for eligible individuals with
disabilities. The revised definition of employment outcome eliminated
extended employment (i.e., sheltered workshops) and other types of employment
in segregated settings as employment outcomess under the program. This regulation
became effective on October 1, 2001 in all 80 state VR agencies across the country,
thereby, allowing only employment in integrated settings in the community as
employment outcomes under this Program.
It should also be noted that the State VR Services Program has
expanded since its reauthorization in 1992 in the areas of consumer involvement
and informed choice. Consumer involvement is mandated at both the individual
and systems levels through self-directed individual plans for employment
and consumer participation on State Rehabilitation Counsels. Since 1992, the
Program has strongly emphasized integrated service delivery and employment options
for individuals with disabilities. In fact, state VR agencies are required to
justify why a service is provided in a non-integrated setting; and, as noted
above, employment in segregated settings is no longer considered an employment
outcome under the State VR Services Program after October 1, 2001.
Coordination with One-Stop Centers
The Rehabilitation Act Amendments of 1998 were included as title
IV of the Workforce Investment Act (WIA) of 1998. Under these amendments, the
State VR Services Program was made a mandatory partner under the One-Stop Career
Centers that are established by DOL under title I of WIA. Since that time, RSA
has been working closely with DOL and state VR agencies to implement appropriately
the new statute. Serving individual with disabilities, especially those with
the most significant disabilities, through the One-Stop Career Centers is intended
to greatly increase community alternatives for individuals with disabilities.
Improve Transition Services for Students with Disabilities
As children with disabilities move through their educational
experiences, planning for and providing transition services become increasingly
important. Under the IDEA, transition planning begins at age 14, or younger,
if determined appropriate by the childs Individualized Education Program
(IEP) team. Transition planning is important for children with disabilities
so that they can move easily from secondary school to post-school activities
and maximize their self-determination in employment and living options.
The transition requirements of section 614 of IDEA challenge
education and other service providers to improve the post-school results of
students with disabilities by working more effectively on planning and preparing
students and families for the challenges and complexities of the adult world,
including independent living.
It is important to note that the IDEA defines transition services
to include post-school adult living objectives. The purpose of the transition
provisions that are included in the students IEP is to identify, arrange
for and coordinate, before the student leaves the secondary school setting,
any anticipated post-school services, programs, and supports that the student
needs in order to help the student achieve his or her goals after leaving secondary
school.
In addition, the 1992 reauthorization of the Rehabilitation Act
of 1973, placed expanded requirements on the State VR Services Program regarding
the transition of young adults with disabilities into the world of work. These
requirements include the development of formal agreements between the state
VR agencies and the state education agencies responsible for special education
programs under the Individuals with Disabilities Education Act (IDEA). The area
of transition offers many opportunities to expand upon the availability of community
options for young adults with disabilities. In this regard, the appropriate
agencies within ED are working collaboratively to:
Improve coordination and policy implementation efforts, including
the provision of technical assistance, policy guidance, and other appropriate
activities to improve transition services for students with disabilities from
secondary to postsecondary education and/or employment.
Improve the coordination of state-level activities among state
educational agencies and state VR agencies to improve post-school results for
students with disabilities leaving secondary school.
Train VR personnel through such mechanisms as RSAs National
Employment Conference, DOLs annual Joint Employment Training and Technology
Conference, and RSA-sponsored regional conferences highlighting promising practices
in the area of transition services planning, including efforts to involve regular
and special education teachers in these activities.
Protection and Advocacy Activities
The Protection and Advocacy of Individual Rights (PAIR) program,
established under section 509 of the Rehabilitation Act of 1973, as amended,
is authorized to protect the legal and human rights of persons with disabilities.
RSA provides grants to organizations in each State to provide systemic and legal
advocacy for people with disabilities. These organizations are actively working
to ensure that the mandate of the Olmstead decision is implemented throughout
this nation.
The following are examples of Olmstead-related activities currently
conducted by PAIR programs:
· The Arkansas Disability Rights Center, Inc. collaborated
with consumer organizations and several state agencies to coordinate public
forums on the implementation of a comprehensive state plan addressing the need
for community alternatives for individuals with disabilities in that state.
· The PAIR program in California (Protection & Advocacy,
Inc.) helped to organize a statewide association of consumers and advocacy groups
focused on the development of an Olmstead plan for the state. The recommendations
of this association were adopted by and included in the mission statement of
the California Long-Term Care Council.
· The Office of Protection & Advocacy for Persons
with Disabilities in Connecticut has brought a class action lawsuit on behalf
of persons with traumatic brain injuries (TBI) residing in state-operated institutions.
This lawsuit was filed in 1990 and seeks to ensure the appropriate treatment
and community placement of persons with TBI.
RSA, along with the Administration on Developmental Disabilities
and the Center for Mental Health Services, both located within HHS, fund a training
and technical assistance contract for the Protection and Advocacy (P&A)
system established by the Developmental Disability Bill of Rights and Assistance
Act of 2000. The PAIR program is a component of this system. In order to enhance
the availability of community options for all persons with disabilities, these
federal partners required that the entity holding this contract make community
integration issues a priority in its training and technical assistance efforts
for the P&As. In order to comply with this requirement, the present
contractor, the Advocacy Training and Technical Assistance Center (ATTAC --
a division of the National Association of Protection and Advocacy Systems (NAPAS)),
hired a full-time staff person, who, along with other senior legal staff, provides
technical assistance to the P&As on Olmstead-related issues. ATTAC
provided training sessions devoted to this topic at its national conferences,
including one entire tract at its annual conference held in June 2001. Furthermore,
the federal partners have included Olmstead-related training as a primary task
in the contract.
Special Education Activities
The Office of Special Education Programs (OSEP) is the office
within ED charged with the implementation of the Individuals with Disabilities
Education Act (IDEA). The IDEA provides formula grants to States to assist in
the provision of early intervention services to children with disabilities from
birth through age 2, and for the provision of special education and related
services to children with disabilities ages 3 through 21.
The reauthorization of the IDEA in 1997 added new provisions
designed to allow flexibility and improve results for children with disabilities
and to promote more inclusive practices and better coordination of services
at the local and state levels. OSEP is committed to help facilitate a flexible,
systematic coordination of services among local and State educational agencies
to implement these provisions that will increase the independence of children
with disabilities.
OSEP has identified the following programs and services that
relate directly to community-based services for children and youth with disabilities.
OSEP actively is engaged in increasing self-determination in living options
for children with disabilities as they move from secondary school to adult living.
Coordinated Services System under the IDEA -- Circumstances outside
the classroom, such as inadequate or substandard nutrition, living conditions,
or health care, have a negative effect on increasing numbers of children, including
children with disabilities. Such circumstances may adversely impact on their
ability to succeed in school. Under the Coordinated Services System provision
(section 613(f) of IDEA ), a local educational agency (LEA) may use up to 5%
of its IDEA Part B funds to develop strategies to improve the access of eligible
children and their families to comprehensive social, health, and educational
services that can help students succeed in school. Linking public and private
agencies to provide these services, LEAs can implement such a coordinated services
system by carrying out various activities.
Under section 613(f) of IDEA, LEAs can develop and implement
interagency financing strategies for the provision of education, health, mental
health and social services, including transition services and related services
under the IDEA. Another activity available to LEAs under this section of IDEA
is interagency personnel development for individuals working on coordinated
services.
IDEA encourages schools efforts to collaborate with public
agencies and nonprofit organizations that provide and pay for services for children
and youth with disabilities, including those with intensive health-related needs.
Section 612(a)(12) of IDEA requires that states establish written interagency
agreements or other mechanisms with agencies such as the health service system,
rehabilitation agencies, assistive technology providers, mental health agencies,
and other organizations such as centers for independent living. These interagency
agreements delineate methods for providing and paying for needed services such
as assistive technology devices and services, transition services, and many
health-related services including occupational and physical therapy.
Provision of Assistive Technology Devices and Services under
the IDEA --
Assistive technology devices and services are essential for many individuals
with disabilities. Under the IDEA, the LEA must ensure that assistive technology
devices and services are made available to a child with a disability if required
as a part of the childs special education and related services, or supplementary
aids and services. In other words, if the students IEP team determines
that the student requires assistive technology in order to receive a free appropriate
public education (FAPE), and designates such assistive technology as either
special education or a related service, the students IEP must include
a specific statement of such devices and services and provide the devices and
services at no cost to the childs parents. The need for assistive technology
is determined on a case-by-case basis, taking into consideration the unique
needs of each child. If the IEP team determines that a particular assistive
technology device is required for home and community use in order for a particular
child to be provided FAPE, the IEP team includes it in the IEP and it must be
provided to the student at no cost.
Under certain conditions, students with disabilities may use
their assistive devices even after the student transitions out of secondary
school. For example, in instances in which IDEA funds have been used to purchase
an assistive technology device for a student with a disability to carry out
the students IEP, including post-school transition activities to increase
independent living, the student may use that equipment after leaving school.
Research Related to Community Alternatives
The National Institute on Disability and Rehabilitation Research
(NIDRR) provides leadership and support for a comprehensive program of research
related to the rehabilitation of individuals with disabilities. The agencys
programmatic efforts are aimed at improving the lives of individuals with disabilities
from birth through adulthood.
The following are examples of how NIDRR-funded research can assist
in enhancing community-based alternatives for individuals with disabilities
related to the Olmstead decision:
NIDRR supports considerable research in accessibility of telecommunications
and computers, particularly for individuals who have impaired vision or hearing.
Through the use of assistive technology devices and universal design, the mission
of such research is to minimize the barriers and capitalize on the opportunities
presented by current and emerging information and telecommunication technologies,
in order to create a world that is as accessible and usable as possible for
as many people as possible. In many cases, these technological advances have
helped individuals with disabilities achieve greater independence.
· NIDRR is currently sponsoring research in several areas
related to technologys role in helping individuals with mental illness
live independently. One project seeks to improve software accessibility, training,
and user support for the population of persons with significant cognitive disabilities
by building on the previous development of accessible life skills software and
developing a participatory model for effective consumer training and support.
Many persons with significant cognitive disabilities are excluded from the benefits
of information technology despite the development of new devices and specialized
software that support physical access. Commercial software remains largely inaccessible,
and the training and technical support needs of these consumers are not addressed.
Other projects seek to improve the capability of computers and sensors to monitor
and remind individuals to take certain actions at different times of the day
(e.g., take medications, keep appointments, etc.)
NIDRR also administers the Assistive Technology (AT) Act of 1998.
The AT Act provides grants to states to increase access to and provision of
assistive technology services and devices. There are 56 AT Act projects that
provide information, training, awareness, technical assistance, and materials
to persons with disabilities, their families, and representatives related to
the benefits, availability, and uses of assistive technology. As noted above,
assistive technology provides an individual with the means to live, work, play,
and learn in the community; allows for independence and full inclusion; facilitates
social interaction, participation, and communication; reduces dependence on
care systems and family; and, in general, increases and promotes self-sufficiency.
These projects have been operational since 1989 and have improved the independence
of individuals with disabilities. In several states, the AT state projects are
taking a lead role in implementing the Olmstead decision. For example, in Missouri,
the state Olmstead Commission charged the projects with taking the lead on such
initiatives as developing a grant program for housing access modifications.
NIDRR will continue to promote the Olmstead decision and the
Presidents New Freedom Initiative by establishing and implementing innovative
programs and policies that lead to greater access to assistive technology, employment,
and transportation through increased interagency workgroups and rehabilitation
research.
Post-Secondary Programs Serving Individuals with Disabilities
The ED Office of Post-Secondary Education (OPE) is responsible
for formulating federal postsecondary education policy and administering programs
that provide assistance to postsecondary education institutions and to students
pursuing programs of postsecondary education. OPE has several programs that
address the needs of individuals with disabilities in postsecondary settings
encouraging community and independent living, including:
Demonstration Projects to Ensure Students with Disabilities Receive
a Quality Higher Education Program -- The purpose of this demonstration program
is to provide technical assistance to and professional development for faculty
and administrators in institutions of higher education in order to provide them
with the skills and support that they need to improve their methods of teaching
students with disabilities. In FY 1999, 21 projects were funded for a three-year
project period.
Learning Anytime Anywhere Partnerships -- The Learning Anytime
Anywhere Partnerships (LAAP) is a grant program that supports partnerships of
postsecondary education institutions, businesses, associations, and any other
relevant organizations to create effective distance education/training programs.
Included in the authorizing statute is a specific encouragement to create learning
opportunities for individuals with disabilities.
In the last two years, about 13% of the grants made in the LAAP
program have been awarded to institutions that along with their partners, are
directly targeting individuals with disabilities or the service providers who
work with individuals with disabilities.
Fund for the Improvement of Postsecondary Education -- The Fund
for the Improvement of Postsecondary Education (FIPSE) has as its primary legislative
mandate encouraging the reform, innovation, and improvement of postsecondary
education, and providing equal educational opportunity for all (Section
741, 1998 Amendments to the Higher Education Act of 1965). This mandate focuses
FIPSEs work on two areas: improving the quality of postsecondary education
and improving access to postsecondary education for all Americans.
FIPSE has supported projects specifically designed to increase
opportunities for individuals with disabilities to function effectively in their
communities. Two projects at Coastline Community College (1994 and 1997), for
example, provide rehabilitative training to individuals who have sustained traumatic
brain injuries severe enough that those persons would not be able to return
to school and/or work without such training.
Enhancing Community Options Through Civil Rights Protections
The mission of the Office for Civil Rights (OCR) is to ensure
equal access to education and to promote educational excellence throughout the
nation through vigorous enforcement of civil rights. OCR enforces five federal
statutes that prohibit discrimination against persons on the basis of race,
color, national origin, sex, disability, and age in programs and activities
that receive federal financial assistance. Among the statutes OCR enforces are
Section 504 of the Rehabilitation Act of 1973, 29 U.S.C. § 794 (Section
504) and Title II of the Americans With Disabilities Act of 1990, 42 U.S.C.
§ 12131,et seq. (Title II). OCR has 12 enforcement offices throughout the
country that handle complaints alleging discrimination on the basis of disability.
OCR also engages in proactive measures by providing technical assistance to
states and local school districts as well as other stakeholders.
In order to enhance community living alternatives for individuals
with disabilities, OCR enforcement offices throughout the country are conducting
targeted technical assistance and training initiatives and OCRs Progriam
Legal Group has prepared a resource document n the area of transition from secondary
school to post-school opportunities. OCR is engaging in these efforts in order
to address the need for accurate information about the different obligations
of public secondary school districts and postsecondary institutions and the
specific obligations of students with disabilities at the postsecondary level.
OCR is conducting targeted technical assistance and training initiatives to
assist school district personnel, staff of postsecondary institutions, individual
state departments of education, state special education directors, state associations
of higher education and disability, students with disabilities and their parents,
parent groups, and other stakeholders to meet their responsibilities under the
law. Examples of current activities include the following:
The OCR enforcement office in Chicago is working with school
districts, a state department of education, parents of students with disabilities,
a parent training group, the Association on Higher Education and Disability
(AHEAD), the organization for disability coordinators in the state, the state
Special Education Directors Association, and other key stakeholders to address
transition issues of students with disabilities from high school to college.
Selected colleges and universities in the state will also be contacted to ease
the transition of students with disabilities enrolled in postsecondary institutions.
At the request of the AHEAD, the Washington Association for Postsecondary
Education and Disability, and the Pacific Northwest Association for College
Admission Counseling, the OCR Seattle enforcement office is addressing an issue
concerning the misunderstandings that many incoming college freshmen with disabilities
have about college-level services and responsibilities. The activities have
included a review of policies and procedures at Oregon AHEAD and its member
colleges and universities; the design and development of a comprehensive web
site outlining the rights and responsibilities of students with disabilities
in college as compared to high school; and the training of state and school
district staff, students, parents and other stakeholders using the materials
on the web site. The web site is now fully operational, and monitoring of its
content and use is ongoing.
The OCR enforcement office in Philadelphia has been informed
repeatedly by college officials in one of the states under its jurisdiction
that freshmen students with disabilities are often unaware of the different
requirements and expectations of the Section 504 regulations in the college
environment as compared to elementary and secondary school settings. OCR will
provide a series of presentations regarding the requirements of Section 504
regulations to college-bound high school students with disabilities, their parents,
and high school counselors from selected school districts. Five regional panel
discussions will be scheduled in local school and community college meeting
halls. High school students who intend to pursue higher education will be invited
to participate on the panels along with representatives of postsecondary institutions.
The OCR enforcement office in Cleveland is working collaboratively
with a state department of education and a state university to develop a series
of regional conferences. The conferences, entitled Access, Advocacy, Achievement,
will be held in the winter of 2002, and will be designed to provide a forum
to assist students with disabilities as they transition from high school to
college, vocational, technical, proprietary school, or employment. Participants
will include high school students, high school transition specialists, postsecondary
disability service providers, specialists and consultants, joint vocational
school counselors, rehabilitation counselors, administrators, teachers, parents,
and parent mentors.
Other current OCR activities that relate to increasing community
options for individuals with disabilities include:
Need for Appropriate Testing Accommodations for College Entrance
Exams -- To ensure that parents, teachers, and counselors are aware of students
rights to accommodations on the PSAT or SAT, consistent with their individualized
education programs, the OCR enforcement office in the District of Columbia is
collaborating with district schools on a comprehensive technical assistance
initiative in connection with the districts initiative to enhance testing
outcomes for all students. During 2001, OCR provided technical assistance and
information to the districts community to ensure that qualified students
receive appropriate testing assistance.
Vocational Education Programs -- The OCR Program Legal
Group (PLG) has a series of on-going activities that relate to vocational education
services for individuals with disabilities to help these individuals progress
further in education and employment. The PLG will continue to review state vocational
education agency Methods of Administration (MOA) plans and biennial compliance
reports and provide case-related policy/legal guidance to MOA coordinators upon
request. In addition, the PLG will be conducting capacity-building workshops
for state MOA coordinators to facilitate their ability to conduct effective
reviews of vocational education programs in their states in order to ensure
that they are meeting the needs of students with disabilities.
IV. Results of the Self-Evaluation
ED conducted a self-evaluation of the laws, regulations and policies
that relate to the programs and projects that it administers. The following
are the results of that self-evaluation. It should be noted that ED program
offices identified many issues that relate to societal barriers and barriers
in programs and policies not under the purview of ED. Therefore, the following
results relate to activities that ED offices can undertake to ensure that ED
programs and policies support community options for individuals with disabilities.
Office of Special Education and Rehabilitative Services (OSERS)
Implementation of Community Living Alternatives
Issue/Barrier: Although the Supreme Courts Olmstead decision
has mandated the availability of community living options, when appropriate,
for people with disabilities, training and technical assistance on such community
and independent living options still need to be provided at the state and local
levels to the public agencies and individuals who implement and the consumers
who benefit from ED programs. Efforts need to be made to ensure that ED and
other federal agency statutes, regulations, and programs that require and encourage
community living alternatives are being properly implemented at the state and
local levels.
Opportunities/Solutions:
OSERS, in conjunction with DOL and HHS, has undertaken funding
the Olmstead Project in which cross-disability leaders and advocates are trained
to work with states to develop and implement the comprehensive state plans for
providing consumer-directed home and community-based services for persons with
significant disabilities.
RSA is providing funding to support two regional Rehabilitation
Continuing Education Programs to develop and implement training for vocational
rehabilitation and independent living professionals, as well as community organizations
on the Olmstead decision in order to improve outreach to consumers.
Independent Living Programs
The Independent Living (IL) State Grants Program supports formula
grants to states, with funds allotted based on population. Funds may be used
to provide IL services, to support the operation of centers for independent
living, to demonstrate ways to expand and improve IL services, as well as other
related activities.
The Centers for Independent Living (CIL) Program provides grants,
on a competitive basis, for consumer-controlled, community-based, cross-disability,
nonresidential, private nonprofit agencies that are designed and operated within
a local community, primarily by individuals with disabilities, and provide an
array of IL services.
The following barriers and opportunities for improvements were
noted under these two IL Programs:
Housing:
Issues/Barriers:
o Service providers under the Title VII IL programs can assist individuals in
finding appropriate housing by providing information/referrals on housing developments
and apartment complexes in their catchment areas. However, referral services
are often hindered by the lack of affordable, accessible housing. In addition,
some individuals may need transitional housing services.
o Federal agencies lack sufficient information to fully understand
the housing needs of persons with disabilities, particularly housing dedicated
to people leaving institutions or of individuals trying to avoid institutionalization.
o Individuals moving from institutions may require financial
and/or technical assistance in order to make modifications to their living space.
IL service providers can assist individuals with disabilities in finding funding
sources for home modifications. However, this assistance is often hindered due
to the limited number of agencies that provide this service as well as the limited
funding available and lack of capacity to provide the needed modifications.
Opportunities/Solutions:
o Explore establishing an ad hoc workgroup comprised of appropriate
federal agencies (ED, HHS, Housing and Urban Development, etc.) to address the
housing issues associated with individuals with disabilities. This effort should
include a mechanism for on-going input from various stakeholders. The workgroup
should also develop materials disseminating information and providing technical
assistance on public assistance to facilitate the transition from institutions
to community living.
o Assess the feasibility of revising CIL reporting requirements
to collect data on housing and related needs.
o Identify resources for funding opportunities for modifications
to living spaces and disseminate that information to State IL programs and CILs.
o During the State Independent Living Council (SILC) Congress,
invite participants to establish a workgroup comprised of representatives from
the SILCs and state agencies and consumers to explore various options that directly
impact upon individuals with disabilities and provide input to RSA regarding
possible statutory changes to the independent living program.
Transportation:
Issue/barrier: While CILs can assist individuals to find appropriate
transportation by providing information/referrals on transportation available
in their area, referral services are often hindered by:
o no available public transportation;
o available transportation that is limited to transportation
for specific activities (e.g., medical appointments);
o available public transportation that is not accessible; or
o lack of coordinated transportation between HHS and the Department
of Transportation (DOT) funded programs.
Opportunities/Solutions:
o Establish a partnership with the Joint Council on Mobility
and Access, as well as relationships with DOT and other transportation agencies,
to survey transportation problems and barriers, recommend solutions, and promote
a network of alternative transportation through community-based and other providers.
o Through partnerships with other public agencies, seek information
regarding resources to assist IL service providers to establish and operate
transportation systems.
o Survey CILs to ascertain what they have done to expand accessible
transportation and disseminate information on promising practices.
Attendant Services
Issue/Barrier: IL service providers can assist individuals
to access attendant services by providing information/referrals on services
available in their area. However, such referral services are often hindered
by:
o the lack of services in the state/local area;
o statewide waiting lists for services;
o the states funding bias towards institutional care; or
o the lack of reliable individuals to serve as attendants.
Opportunities/Solutions:
o Explore how funds for attendant services can be more consumer-driven
and directed through partnerships with relevant Federal agencies such as HHS.
o Explore with other appropriate federal agencies options/partnerships
that will afford opportunities to train personal assistance service providers,
as well as consumers and/or family members or consumer representatives in skill
areas such as recruiting, hiring and supervision of personal assistance service
providers.
Independent Living Skills Training
Issue/Barrier: CILs, in coordination with other social service
agencies, have the expertise to meet the needs of potential consumers who are
leaving institutions. Capitalizing on this expertise may require additional
resources both staff and funding. CILs are required, as one of their
core IL services, to offer IL skills training to individuals with disabilities.
If an individual has been institutionalized for an extended period of time,
that individual may need more comprehensive skills training than currently provided
by CILS.
Opportunities/Solutions:
o Re-evaluate current methods for providing in-service training
for IL service providers (particularly on the needs of individuals transitioning
from institutions to the community) and, as appropriate, implement identified
improvements.
o Seek additional resources, for example, through the coordination
of funding from other federal agencies, to provide focused assistance to CILs
and other IL service providers to improve their capacity to provide IL skills
training to those individuals in particular who are transitioning from institutions
to the community.
Empowerment
Issues/Barriers:
o IL service providers are required to provide advocacy at both
the system and the individual levels. This can be hampered by a lack of access
to individuals who are living in institutions.
o IL service providers provide peer counseling services. As individuals
move from institutions into community settings, they may require peer counseling
services to help them address their IL needsAn influx of consumers will increase
current waiting lists for peer counselors and further overload the current system.
Opportunities/Solutions
o Develop and disseminate public service announcements and other
public information to increase awareness of community-based living options and
other issues associated with the implementation of the Olmstead decision.
o Increase outreach and recruitment efforts to attract individuals
of diverse backgrounds (e.g., race, gender, age, culture, and disability) as
peer counselors through partnerships with minority-identified and other appropriate
organizations.
Transition Services and Activities under the IDEA and the State
VR Services Program
Issue/Barrier: Transition services to individuals with disabilities
is a shared responsibility between special education programs and state VR service
programs. Improved coordination between these programs at the state and local
levels will lead to the provision of better transition services for students
with disabilities.
Opportunities/Solutions:
Coordinate, where appropriate, joint agency monitoring of state
VR agencies and state education agencies to improve implementation of transition
services requirements under the Rehabilitation Act and the IDEA and, when needed,
provide technical assistance to state and local agencies.
Establish a prime study group under the Institute
on Rehabilitation Issues and develop a publication targeted to VR counselors,
appropriate school officials, and other service providers on transition from
school to work for young adults with disabilities.
Protection and Advocacy Services
Issue/Barrier: The Protection and Advocacy of Individual Rights
Program (PAIR), administered by RSA, is underutilized as a resource to publicize
information to individuals with disabilities regarding their rights to community
options and alternatives.
Opportunity/Solution: Develop a Technical Assistance Circular
(TAC) for the PAIR programs in order to promote the involvement of these programs
in community integration activities. The TAC will include: a discussion of the
Presidents Executive Order on this matter; a synopsis of the past and
present activities among the PAIRs; and suggested ways through which the PAIRs
can help to increase community options for persons with disabilities.
Parent Training and Information Programs
ED provides funds to support Parent Training and Information
(PTI) projects for the purpose of providing training and technical assistance
to individuals with disabilities and parents of children with disabilities on
the rights, remedies and programs under the Rehabilitation Act of 1973, as amended,
and the Individuals with Disabilities Education Act (IDEA).
Issues/Barriers: Many individuals with disabilities and their
families have yet to fully appreciate the implications of the Olmstead decision
and are not aware of the full range of community services that are available
for individuals with disabilities as alternatives to institutionalization. Parent
training on the implementation of the Olmstead decision is particularly important
for the families of transition-age youth. Parents have a need to know about
the resources available to assist and support young adults with disabilities
to live independently in the community. PTI projects can play an important role
in educating parents and professionals about Olmstead and the ways it will affect
and improve the quality of life for many people with disabilities.
Opportunities/Solutions: RSA and OSEP, as appropriate, will coordinate
technical assistance activities designed to provide information about the importance
of the Olmstead decision and how PTI projects may serve parents and their children
with disabilities when information and assistance is needed on home and community
living options. The following activities/examples will be explored:
· Trainings for Parents. Parent trainings on the Olmstead
decision can help families raise the expectations they have for community integration
for their sons and daughters with disabilities. Families need to understand
that alternatives to institutionalization and community supports exist that
can help people with disabilities live a meaningful life in the community.
· Dissemination of Printed and Electronic Materials. Parent
centers could develop and disseminate written materials for parents in a variety
of formats such as handouts, newsletter articles, or pamphlets. These materials
can explain Olmstead in easy to comprehend language and can provide information
on resources and agencies as well as provide families with information on community-based
services.
· Individualized Information and Referral and Advocacy.
Parent center staff knowledgeable about the Olmstead decision and its implications
can assist families interested in community alternatives to institutionalized
care. Parent advocates can provide families with information on consumer rights
under Olmstead, advise families on community options, and advise unaware professionals
of the Olmstead ruling and its application locally.
Support for State Parent Training Projects. Parent training projects
in every state can play a meaningful role in the dissemination of Olmstead implementation
information. By working closely with existing parent centers that serve the
families of youth with disabilities in each state, projects have access to comprehensive
mailing lists, effective methods of delivering training to families, and relationships
with key state agencies.
Assistive Technology Research and Access
Issues/Barriers:
The Presidents New Freedom Initiative states that:
Assistive and universally designed technologies can be a powerful
tool for millions of Americans with disabilities, dramatically improving ones
quality of life and ability to engage in productive work. New technologies are
opening opportunities for even those with the most severe disabilities.
Unfortunately, assistive and universally designed technologies
are often prohibitively expensive for the consumer. In addition, federal funds
need to encourage innovation and coordination of assistive technology research
and development programs.
Opportunities/Solutions:
Through the Interagency Committee on Disability Research, chaired
by NIDRR, the federal effort in assistive technologies will be coordinated to
ensure that the highest priority needs of the disability community will be met.
In addition, through the Small Business Innovative Research program, NIDRR will
facilitate the transfer of new technologies to the market place, and through
the Alternative Financing Program under the Assistive Technology Act, NIDRR
will establish and implement innovative programs to enhance the ability of people
with disabilities to obtain assistive technology.
Office of Vocational and Adult Education (OVAE)
OVAE supports a wide range of programs and activities that help
young people and adults secure the knowledge and skills they need to achieve
successful careers and productive lives. As part of OVAEs self-evaluation,
the following barriers were identified, and solutions to enhance community alternatives
for individuals with disabilities were developed:
The Carl D. Perkins Vocational and Technical Education Act provides
more than $1 billion annually to states to support the improvement of vocational
and technical education programs at the secondary and postsecondary levels.
Support services for students with disabilities (e.g., curricula and equipment
modification, instructional aids and devices) are among the authorized uses
of funds. Local education agencies and institutions of higher education are
allocated 85 percent of the funds by formula. States may, however, reserve 1
percent of the total funds allocated to the state to serve individuals
in State institutions, such as State correctional institutions and institutions
that serve individuals with disabilities (section 112(a)(2)(A)).
Issues/Barrier: OVAE currently lacks sufficient information on
expenditures, as well as information to substantiate the extent to which this
authority has been used to support state institutions for persons with disabilities,
and if so, for what purposes.
Opportunities/Solution: Over the next year, OVAE will collect
information about this issue to evaluate the extent to which state implementation
of the authority is consistent with the Executive Order. OVAE expects to make
recommendations for amending the authority based upon these findings as part
of its forthcoming proposal to reauthorize the Perkins Act.
The Adult Education and Family Literacy (AEFLA) Act provides
more than $500 million annually to states to support community-based adult basic
education, English literacy, and adult secondary education instruction. Several
critical factors, including both programmatic and physical accessibility issues,
may limit the effectiveness of services for students with disabilities.
Issue/Barrier: An estimated 16 percent of the nearly 3 million
individuals served last year were between the ages of 16 and 19; another 25
percent were between the ages of 19 and 24. Due to ambiguity in the language
of the AEFLA, some out-of-school youth with disabilities between the ages of
16 through 21 may not be receiving both adult education and the special education
services under the IDEA to which they are entitled.
Opportunity/Solution: OVAE will seek to address this barrier
to services for individuals with disabilities through administrative action
or, if appropriate, in reauthorizing or amending AEFLA.
The Office for Civil Rights(OCR)
Issue/Barrier:
While the number of students with disabilities attending postsecondary
institutions is increasing, many of these students do not often understand the
different standards that exist and the types of services available in postsecondary
settings compared to secondary schools. Students are often confused about their
rights and obligations; this can result in unreasonable expectations. Also,
students may receive delayed or inappropriate services.
Opportunity/Solutions:
OCR's Program Legal Group is planning to issue a resource document
targeted to parents and students that clarifies the rights of students and the
obligations of schools as students with disabilities transition from high school
to postsecondary education. A number of excellent resource materials exist already.
OCR is collecting and reviewing existing materials and will identify and supplement
these, as needed, in the resource document.
OCR is also conducting technical assistance and training initiatives,
through its regional offices, to stakeholders regarding transition of students
from secondary school to post-secondary institutions and improved vocational
education services to students with disabilities so that they can progress further
in education and employment.
V. Conclusion
The Department of Education is committed to eliminating barriers
to the effective implementation of E.O. 13217 and the Olmstead decision. Through
this self-evaluation, ED has found that there are many ways it currently supports
community-based options for individuals with disabilities through ED programs
and activities. ED staff also identified barriers in some ED programs and many
opportunities to expand options and choices for individuals with disabilities.
ED will continue to work to eliminate any barriers to community-based alternatives
and will seek avenues to expand upon the options available to individuals with
disabilities so that they can fully participate in American society.