Capitol Correspondence - 03.26.18

Kevin and Avonte’s Law Passes as Part of Omnibus Bill

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ANCOR is thrilled to share that Kevin and Avonte’s Law (S.2070) passed Congress last week as part of the federal spending omnibus bill. Kevin and Avonte’s law, introduced by Senators Grassley (R-IA), Klobuchar (D-MN), Tillis (R-NC) and Schumer (D-NY), is a bill designed to help families locate children with autism who wander, as well as loved ones with Alzheimer’s disease and related conditions. ANCOR has been a lead supporter of this bill since it was first introduced in 2017. At that time, ANCOR was recognized in the official press release announcing the bill’s introduction (see below, the press release explains the bill in greater detail). Click here to see a summary of the bill, and here for the full language, which is now in effect.


Grassley, Klobuchar Introduce Bill to Aid in Locating Missing Autism, Alzheimer’s Patients

Nov 06, 2017

WASHINGTON – Senate Judiciary Committee Chairman Chuck Grassley and Senator Amy Klobuchar (D-Minn.) have introduced legislation to help families locate missing loved ones with Alzheimer’s disease, autism and related conditions. Kevin and Avonte’s Law (S. 2070), named in honor of two boys with autism who perished after wandering from safety, would also support training for caregivers to prevent and respond to instances of wandering.

“The feeling of dread and helplessness families must feel when a loved one with Alzheimer’s or autism goes missing is unimaginable. But when communities are empowered to lend a hand, these terrifying situations can have happy endings.  Kevin and Avonte’s Law, named for a boy from Jefferson, Iowa and a boy from New York City, makes resources available for technologies that advance the search for missing children, along with specialized training for caregivers and first responders to help prevent wandering by vulnerable individuals,” Grassley said.

“Families and caregivers should have the support they need to keep their loved ones with Alzheimer’s, autism, and other developmental disabilities safe. Working to help family caregivers has been one of my priorities since joining the Senate. Our bipartisan bill will help to educate and train caregivers to prevent wandering and provide our law enforcement officers with the tools they need to help recover missing loved ones,” Klobuchar said.

The bill, which passed the Senate by voice vote in the 114th Congress, is named in honor of two young boys diagnosed with autism who wandered away from supervised settings and drowned.  One of the two, nine year-old Kevin Curtis Wills, died in 2008 after jumping into the Raccoon River near his home town of Jefferson, Iowa. The other, high school student Avonte Oquendo of Queens, New York, drowned in NYC’s East River in 2014.  Six year-old Hamza Elmi of St. Cloud, Minnesota, who was also diagnosed with autism, drowned in the Mississippi River near his home in 2015.

The bill would reauthorize the expired Missing Alzheimer’s Disease Patient Alert Program, and broaden it to support people with autism and other developmental disabilities.  Specifically, the bill would allow Justice Department grants to be used for state and local education and training programs to help prevent wandering and reunite caregivers with missing family members who have a condition linked to wandering. 

Under the bill, the grants can be used for the development of training and emergency protocols for school personnel, to supply first responders with additional information and resources, and for locative tracking technology programs to assist the families and caregivers of individuals who may wander from safety because of their condition.  Grant funding may also be used to establish or enhance notification and communications systems for the recovery of missing children with autism.

Senators Chuck Schumer (D-N.Y.), Thom Tillis (R-N.C.) and Dick Durbin (D-Ill.) are also cosponsoring this legislation. Senator Richard Burr (R-N.C.) will also cosponsor the bill.

The bill is supported by, among others, the Autism Society of Iowa, Autism Speaks, the National Autism Association, SafeMinds, the National Center for Missing and Exploited Children, ANCOR (American Network of Community Options [and Resources]), National Autism Society of America, the Alzheimer’s Impact Movement, the National Down Syndrome Society, and the Color of Autism Foundation.