Advocacy in Action: My Experience at the ANCOR’s Policy Summit & Hill Day

In September, I had the incredible opportunity to attend the ANCOR’s 2025 Policy Summit & Hill Day in Washington, DC. It was a gathering of advocates, professionals, and changemakers committed to supporting the essential work of direct support professionals (DSPs) across the country. As someone who works closely with people who have physical and developmental disabilities, this experience was not only eye-opening but also deeply empowering.

Why We Were There

The Summit focused on a critical issue: the growing threats to Medicaid funding and how these cuts directly impact the lives of people with disabilities, as well as the DSPs who support them every day.

DSPs are the backbone of community-based care. They help people live fulfilling, independent lives by providing support with employment, education, health care, and daily living. Despite their vital role, DSPs face low wages, high turnover, and limited recognition. With Medicaid cuts threatening to destabilize an already fragile workforce, the Summit became a rallying cry for action.

Taking Our Voices to the Hill

As part of Hill Day, I had the privilege of meeting with several Representatives and officials from my home state. We shared not just statistics but also real stories: stories of resilience, care, and the difference DSPs make in people’s lives. I spoke from the heart about the importance of investing in DSPs, not only as a workforce issue but also as a human rights issue.

What struck me most during these meetings was the level of respect and gratitude I felt. Our work was being recognized. The officials we met with listened, asked questions, and in many cases thanked us-not only for advocating but for the work we do every day.

Words That Will Stay With Me

There were many powerful moments at the Summit, but two in particular stood out.

Senator Susan Collins said something that has stayed with me: “A civilization is characterized by the way we treat our less fortunate.” It was a reminder that advocacy isn’t just about policy; it’s about the values we hold as a society.

Another speaker, Tony Coelho, a champion of disability rights who helped enact the Americans with Disabilities Act, said, “People with disabilities want to pay taxes, too.”

In just a few words, he reframed the conversation around dignity and opportunity. People with disabilities don’t want pity; they want equity, employment, and the chance to contribute fully to their communities. That statement hit me deeply, and it’s one I’ll carry forward in my work.

A Renewed Sense of Purpose

Coming back from DC, I feel more motivated than ever. The experience reminded me that advocacy isn’t reserved for politicians or lobbyists; it belongs to all of us. We must speak up, especially when the voices of those we support risk being ignored.

I returned not only with policy talking points but also with a renewed sense of pride in my profession. Being part of a movement that uplifts DSPs and the people they serve left me hopeful and determined to keep pushing for the recognition and resources our field deserves.

Final Thoughts

This work isn’t easy. But it matters. Being in the halls of Congress and sharing our stories reminded me how powerful our voices can be when we use them together. 

To anyone reading this: If you care about equity, dignity, and supporting our most vulnerable citizens, pay attention. Speak up. Advocate. And remember, a civilization is defined by how it treats those who need the most support. 

Christopher Allen is DSP and Employment Specialist at 3Rivers in Maine and a member of the inaugural cohort of ANCOR’s DSP Ambassador program.